I’ve Over-Exposed My Vagina, According to Embarrassed Others

Apparently, my vagina is not only “different from everyone else’s,” as a former gynecologist told me when I was 20, but also is a source of embarrassment for some people connected to me.  Why?  Because I dared to reveal the whole of my diethylstilbestrol (DES)-induced deformities, including my misshapen vagina and underdeveloped, one-third-normal-size, T-shaped uterus.

I could understand the embarrassment by association if, perhaps, I had announced that I had tattooed an X-rated message for my husband on my vagina or undergone plastic surgery to have my vagina resemble that of a successful porn star.  However, my sin is to have been honest about the damage done to me, when I was innocently in utero, by the synthetic, completely useless estrogen DES.

If there were more awareness of the negative impact of DES, from its reproductive-tract abnormalities to its increased cancer risks, more of us who have been exposed would be able to help ourselves by identifying ourselves as DES Mothers, DES Daughters, DES Sons and DES Grandchildren; by educating ourselves, then advocating for ourselves, our children and grandchildren; and by ensuring that we have proper medical care. 

Instead, because all of the pharmaceutical companies—and most prescribing doctors—were afraid of the legal ramifications of notifying those millions of women exposed to DES, they kept quiet.  As a result, many DES Mothers, those who took the medication while pregnant (and other women to whom it was prescribed for menopause symptoms), have no knowledge of having taken this drug, which was prescribed under hundreds of brand names—and even inserted into prenatal vitamins. 

When DES Mothers are unaware of having taken DES, they are unable to inform, educate and warn their sons and daughters of the potential alterations to their reproductive systems and their greater risks of associated cancers, infertility and more.

Even some doctors are uneducated about DES and unaware of its life-long repercussions.  The first doctor to mention the uniqueness of my vaginal shape immediately asked if my mother had had trouble getting pregnant.  She hadn’t, I explained.  This doctor wasn’t knowledgeable about the myriad of bogus justifications for DES prescriptions, which ranged from eliminating nausea, to preventing miscarriage, to simply having bigger, healthier, happier babies. 

Because I contradicted the sole reason my gynecologist mistakenly believed DES had been prescribed, she never mentioned the drug by name, nor mentioned any other potential concerns.  She simply gave me another birth-control prescription and sent me on my way until my next annual exam. 

However, because of my DES exposure, I never should have been on the pill for I’d already overdosed on synthetic estrogen as an embryo, therefore additional exposure to it could kick start its negative side effects, such as vaginal, cervical, uterine and breast cancer.  Further, because of my increased risk of cancers of the reproductive organs, I require a special, more-thorough annual pap smear, which was never done.

But, this was only the first missed opportunity.

When I was 35 and unable to have a successful pregnancy, my reproductive endocrinologist performed a Hysterosalpingogram (HSG) that revealed my deformed, underdeveloped, T-shaped uterus.  She never mentioned DES as the cause or a potential cause, nor did she caution me about the risks of the course of treatment she was recommending for my future pregnancy attempts:  Injecting myself with even more estrogen in order to make my tiny uterus less rigid, therefore more likely to stretch out during pregnancy.

This was the second missed opportunity.

Searching online, I first learned about the link between DES and the T-shaped uterus after my HSG, but the information I found was solely about the effect of my uterine abnormality on fertility and pregnancy.

I asked my mother if she had been given any medication when she was pregnant with me, mentioning that DES had sometimes been injected into patients.  She knew she’d never been given shots and had no memory of having taken other medications while carrying me.

This was the third missed opportunity.

With no awareness that I am a DES Daughter, with no knowledge of the potential consequences of repeated injections of estrogen, I did three rounds of intrauterine inseminations (IUIs), complete with fertility drugs including estrogen.

After I successfully conceived, and my son was born 4½ years ago, I considered myself as having triumphed over my deformed body, and I gratefully moved on with my life.  Also, I went back on the pill, exposing myself to estrogen once again.

When my husband and I moved to the Chicago suburbs four years ago, I don’t even know if I mentioned my T-shaped uterus to my new gynecologist, because I thought it was a non-issue.  When I consulted with this gynecologist about my risk for ovarian cancer because of my three prior medicated IUI cycles, plus my desire to pursue in vitro fertilization (IVF) to have another child, she explained that I was not at any increased risk because I had stopped my ovulation for the majority of my life by being on the pill.  She stated that the women who have died of ovarian cancer linked to infertility medications were never on the pill, never had a pregnancy and over-stimulated their ovaries over and over in their increasingly desperate attempts to conceive.

Yet another missed opportunity.  For me, an unidentified DES Daughter, the birth-control pill was not the salvation that made me able to pursue infertility treatments; it put me more at risk.

Believing it was safe for me to pursue the three IVF cycles that our medical insurance carrier will cover, my husband and I moved forward with IVF with pre-implantation genetic diagnosis (PGD).  At my initial consultation with my reproductive endocrinologist, I gave him the X-rays of my T-shaped uterus.  He never mentioned DES, nor did I, being unaware that I am a DES Daughter.  And, he started me on a medication protocol—once again involving injections of estrogen.

Oh, all the unnecessary estrogen…

It wasn’t until five weeks ago, when I was doing a search for terms related to my website, to see if and when www.mkkennedy.com would pop up, that I found the DES Action USA website, www.desaction.org, and learned the full impact of DES exposure.  After communicating with Fran Howell, the executive director of DES Action USA, I learned that the T-shaped uterus is a sure sign that I was exposed to DES because this abnormality does not occur in nature.  And, after providing my mother with my increased knowledge of the multitude of ailments for which DES was prescribed, she now remembers taking medication for nausea while she was pregnant with me, but only for a few days because it didn’t work. 

And, yes, it didn’t work, because DES did NOTHING for these millions of innocent women to whom it was prescribed.  Yet it did horrific, hidden things to their children.  Horrific, hidden things that are painful to reveal, such as penises with the holes in the wrong places, undescended testicles, abnormal vaginas, T-shaped uteri.

I spent years ashamed of my vaginal deformity.  I was completely isolated, for I had heard nothing nor read anything about any woman with a similar problem with her private parts.  Only in the past few weeks have I been inundated with information, because I started actively searching for it. 

DES Action co-founder Pat Cody’s book, DES Voices: From Anger to Action, available via www.desaction.org, has been the main source of my newfound knowledge.  DES is a well-kept secret, except for this book, plus a handful of others written in the 1970s and 1980s by and about a few brave DES cancer survivors, women who had to have their vaginas, cervixes, and uteri removed, then have their vaginas reconstructed.

I asked my husband, “What would you do if I had to have a vaginectomy?”

“Oh, that would be bad,” he said.

The DES secret was initiated and welcomed by the pharmaceutical companies, yet it is perpetuated by the DES exposed, who, understandably, want to fit into the world as normal.  And, when clothed and often unclothed, we look normal on the outside, so our birth defects are easy to hide.  We’re not missing arms or legs.  But, unlike missing limbs, our exposure to DES can kill us.

In my case, my vaginal deformity and T-shaped uterus are only identifiable by medical professionals.  I could have gotten away with never having said a word to anyone about my vaginal abnormality. 

However, hiding, maintaining the lack of awareness of DES, helps no one.  Except those embarrassed by association with my vagina, apparently. 

I am now a 41-year-old, confident woman.  My husband and I are both comfortable with my being open about the effects of DES exposure on me.  (As I explained in my post, “How My DES Exposure Has Affected My Husband,” he had a mini-freak-out when I told him I’d written about my vagina—until he read my post.  Then he was fine with it.) 

My vaginal abnormality is not my fault.  I am not talking about my vagina to be sensational.  I have no desire to be known as “Woman with Weird Vagina.”  I am speaking out because, if only more of the DES exposed had done so, perhaps I could have made the connection between my deformities and DES, I could have educated myself, and I could have protected myself.  I could have stopped two decades of unnecessary exposure to estrogen.  And, if I had decided to move forward with infertility treatments regardless, my decision would have been an educated one.

I didn’t have those opportunities, but I deserved them.  And, so does every other person exposed to DES.

So, to those who are embarrassed that I’m writing about my vagina, please recognize how blessed you are to not have suffered my same fate.  You have no investment in knowledge about DES becoming more prominent, but I do.  My mother is at greater risk for breast cancer.  I’m at risk for various, numerous health problems.  And, with new information that DES can affect the third generation, I have to fight for my son and the unborn twins I am carrying, all DES Grandsons.

Lucky you—for you can avoid any future embarrassment tied to my discussions of my DES-induced deformities by simply not reading my blog posts. 

But I am a DES Daughter, mother of DES Grandsons, so I don’t have the luxury of passivity or avoidance.

No comments yet.
You must be logged in to post a comment.
  • juicy shaved pussy
  • chubby latina girls naked
  • black girls masterbate webcam
  • close up teenage pussy
  • free mexicans girls videos
  • lesbian pissing teens
  • voyeaur pussy shots
  • hot girl bitch
  • youngest teen strip
  • atonement sex scene vids
  • sexy young teens free pics
  • erotic blackberry pin exchange
  • photos my sexy wife
  • ebony lesbian movie gallary
  • japan shirt girl sharked
  • english teen pics
  • large and black beauties
  • teen blowjob cumshot movie
  • amateur sex videos thumbs
  • sexy black stockings housewives
  • free asian teens pic
  • amputees showing pussy
  • Yoga sex
  • asian teen dance
  • squeezing tits movies babe blond
  • sexy girl next door free
  • third party teen gallery web sites
  • sex cum lesbian orgasm
  • sex teens orental red head
  • college footballers xxx
  • amateur couple sex tapes orgasm
  • japanese message girl
  • amateur teens masterbate each other
  • slutload massage erotic lesbian
  • hatching baby chicks video
  • oral sex stories only
  • christine and hairy pussy mpeg
  • reading pa swingers party
  • family sex young girls pictures
  • Hot horney lesbian
  • teen sex free full movies
  • sexy little tits teens naked videos
  • hardcore muscle cowboy
  • butt naked latin girls
  • Ass teen mouth videos
  • little oral annie tubes
  • pretty young models xxx
  • hot chicks getting undreesed pron videos
  • decorating ideas for bedrooms teen girl
  • hot young sex girls
  • couples teach young sex pics
  • casting shemale movie
  • australian relationships old man young girl
  • amature wife at adult theater video
  • naked girls smokeing weed
  • beautiful brides xxx cunt fuck
  • miget sex videos
  • teen oral cheerleader
  • free girfriend sex videos
  • young girls suck and swollow
  • adult xxxrated novels for couples
  • fuck a british star
  • lesbian orgasm grind
  • lesbians using butt plugs video
  • mature lesbian pp
  • brothers having sex pictures
  • download to own classic movies
  • suck mistress pussy tubes
  • homemade naked group girls nudist party
  • horny lesbain sex movies
  • bush blonde teen
  • black beauties fuck white cock
  • teens strip videos
  • Nude erotic teen
  • Fucking indian girls videos
  • stephen king movie ex star
  • petite mal seizures in ren
  • amateur toplist
  • slutty lesbian teens
  • Bangladeshi girls breast
  • big tits retro movies
  • sex with granny xxx pictures
  • hackers movie jennifer lopez naked
  • asian madness sex gallery
  • punishing teen girls
  • printable quizzes for teen girls
  • milf mpg petite small breasts
  • Tiny pussy xxx
  • free hot young movies
  • bikini teen halloween
  • girls fucking eachother up the butt
  • Black on black lesbians
  • pakistan girls sex pohto
  • exotic nude babes that are lesbians
  • japanese amateur blow jobs
  • japanese young lesbians
  • girls ass shaking in cool shorts
  • accidental sex movies
  • Real girls getting naked
  • uvu girl naked photos
  • why do you think of pussy
  • Hot black anal
  • hot blonde girls in thongs
  • free bubble butt movies
  • interview love anal
  • marylin monroe blowjob video
  • hustler video bang my boobs
  • water lilies movie sex
  • teens and fucking machine videos
  • hq nude young girls
  • free like girl galleries
  • older asian escorts sex
  • teen web videos
  • huge natural breasts and free video
  • japanese girls with older men
  • pussy destroyed videos
  • black and white picture book
  • cum in pussy tubes
  • free mature blonde big tit videos
  • young girls lingere
  • xrated black
  • free real interracial videos
  • fuck videos free download
  • adult sex free lesbian movies
  • amateur lesbian tit sucking
  • men seeking men for anal sex
  • Big black ass gets fucked
  • office party flashing nip slip
  • free old mature tit movies
  • older women with younger men naked
  • free naked blond videos
  • girl on girls having sex
  • anal hurting sex
  • cock dick
  • free thumbnails threesomes group sex
  • Teen stripping pics
  • lesbian threesome bed double fisting
  • mdma group sex
  • free tips for anal sex
  • extream hardcore
  • doing the butt music video
  • free hot sex movie thumbnails
  • Hot sexy lesbians having sex
  • lesbian boob fuck
  • totally nude and naked college girls
  • italian mature pussy
  • free asian dominatrix movies
  • Nylon feet lesbians
  • my girlfriend cant orgasm
  • sex melayu picture
  • movie girl fingered on ride
  • free tube pussy
  • anal hd
  • sexy girls blowing balloons up
  • chelsea handler pussy shots
  • wifes first threesome stories mfm
  • bazilian bikini girls erotic
  • blondie baby ass pics
  • petite young xx pix
  • free lesbian strap on fuck movies
  • indian mms sex videos
  • disney anal sex
  • nude petite teenager movies
  • free amature sex wife video
  • pictures of young naked female models
  • leaking breasts movies
  • asian mistress blond slavegirl
  • black group sex cum shots
  • sexy black lesbian sex
  • ree teen video thumbs
  • america america black star
  • girls huge nipples
  • playboy models in movies
  • Lesbian feet smell
  • japanese breasts massage videos
  • chronic girls vids
  • xxx hardcore and stories
  • hot young tranny gets anal
  • Hot nude katrina kaif
  • amateur video japanese cuckold wife video
  • live black lesbian
  • Forced interracial movies
  • melco amateur radio japan
  • thich black pussy
  • anal mature threeway
  • free doll sex video
  • candid sex teens
  • banned girls tube
  • mature blowjobs movie thumbs
  • nude female butt galleries
  • jimmy carter is a pussy
  • white cuckold wife black pregnant
  • Megan fox sex photo
  • rough anal cock riding video
  • watch black hardcore sex
  • girl next door in for sex
  • Teen chubby pics
  • amateur daily video
  • girls being taken advantage of pics
  • big dick big tits tranny
  • girls dress sexy
  • pubic hair in young girls photo
  • big black butt anal tube
  • escorts girl party
  • perfect pussy fucking
  • kate fuck
  • pettie girls video
  • girls naked titties
  • show your young pussy
  • art sex amateur
  • lesbian sex at tube
  • sex videos streaming paris
  • Huge black cock interracial
  • retro vintage hairy pussy
  • Mtv real world girls nude pics
  • sexy teens srtiping showing their brest
  • Naked real sex
  • bikini model babes girl sexy hot
  • jo champa pussy
  • Young breast picture
  • largest objest ever put in pussy
  • sexy asian philippino girls
  • Katrina halili sex videos
  • hot ass babe movies
  • cd girls free sex videos
  • flexible girl sex video
  • long sausage young tits
  • hairy pussy postings
  • Girls have lesbian sex
  • mature pussy xhampster
  • little girl sweet wet pussy thumbs
  • Denmark sexy girl
  • kira knightley naked pictures
  • wife interracial pics
  • hot amateur pictures
  • Oriental lesbian
  • bikini best girls teen
  • Fuck girls images
  • nude women from reality tv pics
  • kinky mature sex movies
  • Ass parade
  • extraordinary teen beauty
  • asian pussy ccm
  • spreading mature sex
  • diamond foxxxx wife cheating on you
  • Nude photos of indian girls
  • hardcore toons
  • fuck preachers wife storie
  • against will tube videos at
  • naked amine girls forced video
  • sexy girl with under hair
  • lesbian asian ass
  • brittanys bod pussy pics
  • parris quinn erotic pics
  • Best indian sex story
  • vanessa raia sex video
  • Asian cum tits
  • pussy willow buds
  • native teen anal
  • natural milf pussy
  • club glamour movies
  • cassandra calogera anal sex
  • girl from hot bikini
  • petite teen deepthroat
  • frre asian sex
  • mature mom sex video
  • free young boys sex vids
  • super cumshot on pussy
  • vids of eating pussy
  • lesbian deep ass licking videos free
  • mature russian xxx models
  • free sex amateur video party
  • korean pussy galleries
  • older mature black women
  • hardcore wife swappers
  • masterbating big tits vids
  • Hot girls in bangladesh
  • party girls pussy
  • old guys ns young girls
  • girl eats shit off of dick
  • young emotionally mature
  • phat ebony tits vids
  • brunette pussy closeup
  • Worlds best lesbian
  • mature white moms black cum
  • bbs beauty pageant girls nudist
  • japanese girls suck
  • oral sex mature moms
  • chica video fuck
  • mature woman seducing young girls
  • petite beurre nantes butter cookies
  • most hardcore bdsm
  • Outdoor sex movies
  • max hardcore schoolgirls download
  • pictures big girls tiny swim suits
  • gena lee nolin galleries
  • suck my pussy mom
  • very mature naked bbw vids
  • three musketeers erotic streaming movie
  • miss america sex pics
  • insertion galleries
  • japan school girls hogtied
  • real wife humiliation sex
  • Tiny sexy girl
  • donne mature xxx ferrara free pics
  • russian star pics
  • russian virgins galleries
  • Sucking tits
  • mature black teachers
  • blonde girl with black
  • estiality sex movies
  • mature sex oictures
  • bizarre sex mature fist pics
  • tamil blue naked picturesfree
  • tila tequila sex video nude lesbian
  • cock ring sex pictures
  • best free movies stream
  • Full naked lesbians
  • videos nude
  • commercial with girl at the movies
  • petite ebony lesbian sex
  • free young hot girl ongirl
  • black sex
  • amateur wife first lesbian
  • reuben naked pics
  • swollen fat pussy lips
  • Sex advice for teens
  • japan teen model free
  • free videos flashing outdoors
  • gymslip girls
  • sexy long nipples
  • busty tranny anal galleries
  • beautifil pussy fuck videos
  • couples fun sex vids
  • uncontrollable orgasm videos
  • big tits school movies
  • muscle black woman handjob
  • horny sweet teens free movies
  • Heather graham sex vid
  • womens petite pnats
  • japanese girls in sailor uniforms
  • korean wonder girls singers
  • fucked in tight pussy
  • blonde girls hairy arms
  • sex anal tit cum
  • angel nj brunette sex boobs fuck
  • eating fat girl pussy
  • wife hien vids
  • butt floss gallery
  • mona and lisa xxx
  • sweet kacey interracial videos
  • teen with red hair anal
  • tiny teens blowing massive dicks
  • naked man movies
  • Naked girls showing
  • fingering saved pussy
  • hq pics chubby girls
  • xxxx young lesbians
  • Naked latin models
  • anal white girl
  • shaved young twinks
  • abi titmuss hardcore video
  • Black giant pussy
  • Supermodel nude photos
  • free xxx blonde teen pics
  • bis ass pictures
  • young girls with
  • Maria sharapova nude picture
  • my wife oh god fuck me
  • New moon sex scene
  • Incest sister sex
  • amateur movies private
  • young skinny schoolgirl free movies
  • Squirting chinese teens
  • road to el dorado videos
  • wife videos
  • snake sex wife
  • teen bunnies videos
  • Aishwarya rai naked videos
  • dinara h cup tits video
  • young black girls fucking tubes
  • young glamour model home
  • fuck my young tight pussy
  • free wemon on dokey movie
  • bitch girl name
  • big tits lesbian tubes
  • indian lesbian sex and spanking
  • groovy girls party
  • free naked big titts movies
  • sophiedee pussy grinding videos
  • self video orgasm
  • Megan fox sex scene
  • Sexy red hair girl
  • Sex y pics
  • ass to pussy taboo
  • old couples orgasm videos
  • Big boobs hot sexy girls tits
  • resdential teen girl treatment facilities utah
  • young teens with alittle wiehgt
  • tales of vesperia videos
  • teacher young girl kiss
  • videos in turkish
  • ebony men videos
  • live asian girls
  • teens girls love anal
  • j crew petite dresses
  • young lesbian brutal sex cam
  • tubes of young girls bath
  • striper babes pics